I am so excited to share "Living with CDKL5" from the AdaptiveMall site!
Click here for Lily's story
A few months back I saw the whole "living with" series on the site and emailed them to ask how we can take part and they sent me a questionnaire and asked for some pictures and I was thrilled to oblige!
I love how it turned out and am so grateful they included so many photos and even our CDKL5 and Me video I made 2 years ago.
So happy to be able to share our precious girl with the world and bring more attention to CDKL5!
Hope you all enjoy it as much as we do!
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