I can't brag about my friend LIZ enough! We showed up with a sleepy Lily and well a 2 year old Oli. It was about 90 that day yet I made us pretend it was in the 70's and we left the session thinking no way we got anything! But in true Lizzy fashion she surprised me with some stunners! Now there aren't a ton, but the ones we got are priceless.
Today is the one year anniversary of the scariest day/weeks of our lives. On this day, April 7th, last year Lily had her spinal fusion surge...
Who Am I?
I'm Kim! Wife to handsome Andrew and lucky mom to these 3 beautiful kids. I am a CDKL5 fighter, homework enforcer, hair braider, dinner making, ninja blocking, lego building, appointment going, advocate who loves living her life for Christ and making others laugh along the way.
LilyAnna Blu 13
CDKL5 Disorder (sometimes known as Atypical Rett Syndrome)