Wednesday, June 1, 2011

April showers bring May .. good byes?

I knew in April we'd have one good-bye to say in May. What I didn't know is we'd have 4 good-byes in May.
Yes I am still working on "The Story of Us" I've spent hours on it and still am not finished. Will share later.
But back to May good-byes.
Two caregivers whom we really loved left at the end of this month. It was for reasons out of our control and no hard feelings are shared by anyone at all. The exact opposite. Nothing but love for those two wonderful women who spent lots of time with our family, giving Lily their all. Ms. Sharon was like a Grandma to all the kids and they just loved her to death. Andi Jane says every day she wishes Sharon was still here. But we love Sharon and wish her nothing but the best moving on. But we can publicly say how much we will miss her right? And Ms. Julie wasn't with us as long, but she was good! She worked in a special needs classroom and incorporated all she knew with Lily at home. It was a sudden opportunity she couldn't refuse so we lost her, but deeply miss both women.
Lily's neuro is in Oklahoma. I don't know what else to say. I thought the tornado's would keep him here. But he is gonna be THE MAN there, so we can't wish him ill will, but he has been with us for 7 years. 7 years! He is the guy who says what do you think? What med do you think helped? What are your wishes? He worked WITH me, never against me (well except when he refused CDKL5 testing, but it was nice proving him wrong so that was ok), he was funny with British charm and no I didn't have a crush on him, I just really liked the guy and am really sad to have to change after all these years.
And I got a call yesterday from Lily's Music therapist that tomorrow will be her last day.

We're heading to Greer tomorrow after therapy and just going to enjoy the beautiful weather and all the charm that small town can give us.

God is in control. God is in control. God is in control. God is in control. God in is control.

2 comments:

Reagan Leigh said...

I feel your pain about the neuro! We're losing our neurologist as well. We switched to him after dealing with the most horrific, compassionate neuro ever! He's the one that put Reagan on Banzel (which ultimately led to her being seizure free). I'm not sure what we're going to do now. Maybe we need to go to NY once a year to see him? That wouldn't be so bad would it?

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