I knew in April we'd have one good-bye to say in May. What I didn't know is we'd have 4 good-byes in May.
Yes I am still working on "The Story of Us" I've spent hours on it and still am not finished. Will share later.
But back to May good-byes.
Two caregivers whom we really loved left at the end of this month. It was for reasons out of our control and no hard feelings are shared by anyone at all. The exact opposite. Nothing but love for those two wonderful women who spent lots of time with our family, giving Lily their all. Ms. Sharon was like a Grandma to all the kids and they just loved her to death. Andi Jane says every day she wishes Sharon was still here. But we love Sharon and wish her nothing but the best moving on. But we can publicly say how much we will miss her right? And Ms. Julie wasn't with us as long, but she was good! She worked in a special needs classroom and incorporated all she knew with Lily at home. It was a sudden opportunity she couldn't refuse so we lost her, but deeply miss both women.
Lily's neuro is in Oklahoma. I don't know what else to say. I thought the tornado's would keep him here. But he is gonna be THE MAN there, so we can't wish him ill will, but he has been with us for 7 years. 7 years! He is the guy who says what do you think? What med do you think helped? What are your wishes? He worked WITH me, never against me (well except when he refused CDKL5 testing, but it was nice proving him wrong so that was ok), he was funny with British charm and no I didn't have a crush on him, I just really liked the guy and am really sad to have to change after all these years.
And I got a call yesterday from Lily's Music therapist that tomorrow will be her last day.
We're heading to Greer tomorrow after therapy and just going to enjoy the beautiful weather and all the charm that small town can give us.
God is in control. God is in control. God is in control. God is in control. God in is control.
Awhile back our board (IFCR) received a request/invitation for one of us to attend a conference a family was holding in Albuquerque, NM. Con...
I wonder if I didn't have facebook I would blog more. I am sure I would but since I do have facebook..well you know. A 3 sentence status...
There we were laying on her bed, her tears were flowing down her face as mine sat pooled in my eyes just one blink away from spilling over ...
OK can I just say being a mom is hard? Can I get an AMEN? We have to lift each other up, because I know so many of us are doing enough of kn...
It’s a long drive from Phoenix back to home, luckily it’s almost all freeway and usually in the middle of the day so it isn't an awful ...