Well things are a bit crazy at the moment. The fundraiser is moving along. School starts tomorrow. Andi has her lunch packed and in the fridge. We won't know if she can ride the bus until August when they know the routes for sure and if there is room for her. It will not be cool if she can't ride the bus, but we will adapt like with everything.
I'm not in the greatest of moods right now. Nothing to post about. Feeling a bit blah.
Lily's seizures are out of control. She did good for a week after we upped the meds in the hospital, but they just came back. I am finally just realizing this is how CDKL5 and LGS works. Periods of seizure control and periods of not. Par for the course. Just sucks.
I wonder what Ollie and I will do during these days. With out Andi entertaining him he may not know what to do.
I can't believe this is the night before Andi starts Kindergarten. I can't believe Lily is in the 3rd grade. This seems so surreal.
Photos will be posted tomorrow!
Awhile back our board (IFCR) received a request/invitation for one of us to attend a conference a family was holding in Albuquerque, NM. Con...
I wonder if I didn't have facebook I would blog more. I am sure I would but since I do have facebook..well you know. A 3 sentence status...
There we were laying on her bed, her tears were flowing down her face as mine sat pooled in my eyes just one blink away from spilling over ...
OK can I just say being a mom is hard? Can I get an AMEN? We have to lift each other up, because I know so many of us are doing enough of kn...
It’s a long drive from Phoenix back to home, luckily it’s almost all freeway and usually in the middle of the day so it isn't an awful ...