Well things are a bit crazy at the moment. The fundraiser is moving along. School starts tomorrow. Andi has her lunch packed and in the fridge. We won't know if she can ride the bus until August when they know the routes for sure and if there is room for her. It will not be cool if she can't ride the bus, but we will adapt like with everything.
I'm not in the greatest of moods right now. Nothing to post about. Feeling a bit blah.
Lily's seizures are out of control. She did good for a week after we upped the meds in the hospital, but they just came back. I am finally just realizing this is how CDKL5 and LGS works. Periods of seizure control and periods of not. Par for the course. Just sucks.
I wonder what Ollie and I will do during these days. With out Andi entertaining him he may not know what to do.
I can't believe this is the night before Andi starts Kindergarten. I can't believe Lily is in the 3rd grade. This seems so surreal.
Photos will be posted tomorrow!
I find it hard to believe I am on Post 4 and just 3 days into the whole ordeal. And honestly not finding much energy to do this and I guess ...
Lily was granted a Make A Wish some time last year. I can't tell you what we had for dinner last night so don't judge. I recently th...
Today is the one year anniversary of the scariest day/weeks of our lives. On this day, April 7th, last year Lily had her spinal fusion surge...
So 7 years ago today I went into labor after a pedicure and a castor oil root beer float. I did what I had to do. If he didn't come befo...
Dear my Andi (stuck in the middle) Jane, Hey there my girl! I’m writing this the day after you turned 10 (10?! When did that happen?) S...