So two days into Depakote I got a phone call from Lily's school saying she was sick. Bad diarrhea and dry heaving. No high fever and Lily's nurse was pretty sure it was a reaction to the new drug. Knowing we were leaving and having Grandma in town I decided to stop changes. Put Topamax back up and discontinue Depakote. That was a good idea because apparently Lily did very well while we were gone with no big seizures. I guess her drops were a little worse so we tweaked a little with the Topamax and study drug and I think we are at a good place. She seems to be doing better than she has been in a long while. Yesterday was the second day this school year she didn't have a seizure at school. That is awesome! Fingers crossed it stays nice and mellow around our home.
Playa Del Carmen was beautiful! The wedding was gorgeous! I have pictures on my Flickr account if you all want to check them out!
I also uploaded new pictures of Lily at Horse Therapy. I just can't get over how big she looks like on the horse. She is so in her element on Ruby the pony.
Big girl is having her party on Saturday! I cannot believe I will have a 6 year old! When did that happen??????
Thanks for all your prayers and concerns for Lily. Please continue to pray that she stays stable and maybe we start learning some new stuff without the darn seizures messing everything up. Have I ever mentioned I hate seizures?
Ever leave your room to take folded clothes to your daughters room, walk into that room and see that your son "fed" the guinea pig...
Lily was granted a Make A Wish some time last year. I can't tell you what we had for dinner last night so don't judge. I recently th...
This was one of my most favorite jokes to tell as a kid. What did one tonsil say to the other tonsil? Hurry the Dr. is taking us out tonight...
Today is the one year anniversary of the scariest day/weeks of our lives. On this day, April 7th, last year Lily had her spinal fusion surge...
Deuteronomy 6:4-9 Talks about imprinting the commandments on our hearts, impress on our children, vs9 says Write them on your door frames o...